社团名称：

RareGen罕见并不孤单

社团介绍：

大家好！我们是专注于罕见病而成立的社团！
Hello, everyone! We are a club established with a focus on rare diseases!

在RareGen，我们相信：每个生命都值得被看见，每个声音都应当被听见！
科学×人文，我们正在创造改变！
At RareGen, we believe that every life deserves to be seen and every voice should be heard!
Science × Humanities, we are creating change!

我们的三大行动方向：
Our three major action directions:

一、科普教育
1. 举办"基因探秘"系列讲座（邀请三甲医院专家、遗传学教授）
2. 运营多平台科普账号（推特/微博，ig/小红书，TikTok/抖音，threads），用短视频、文章讲解罕见病
 I. popular science education
1. Host a series of lectures on "Exploring Genes" (inviting experts and genetics professors from top-tier hospitals)
2. Operate multi-platform science popularization accounts (Twitter/Weibo, ig/ Xiaohongshu, TikTok/ Douyin, threads), and explain rare diseases through short videos and articles


二、学术推动
1. 文献整理与分享：挖掘最新研究，制作易懂的科普资料
2. 开放实验（如：蒙眼行走体验视力障碍，用橡皮筋模拟肌肉萎缩）
 ii. Academic promotion
1. Literature organization and sharing: Explore the latest research and create easy-to-understand popular science materials
2. Open experiments (e.g., walking blindfolded to experience visual impairment, using rubber bands to simulate muscle atrophy)

三、患者支持
1. 成为医院志愿者，陪伴患儿游戏、学习罕见病相关软技能
 III. Patient support
1. Become a hospital volunteer, accompany children patients in playing games and learning soft skills related to rare diseases

社团活动计划：

2025:
9月/September：1. 社团开放日/Club Open Day
2. 社交平台账号开通，征集社员的罕见病科普文章并发表/Open social media accounts, collect rare disease popular science articles from members and publish them
10月/October：1. 邀请专家开展讲座/Invite experts to give lectures
2. 征集社员的罕见病科普文章并发表于社交平台/ collect rare disease popular science articles from members and publish them on social media
11月/November：1. 创意实验/experiment
2. 征集社员的罕见病科普文章并发表于社交平台/ collect rare disease popular science articles from members and publish them on social media
12月/December：1. 与其他社团在万圣节or圣诞节开展联合活动，相关饮品or展览/Organize joint activities with other clubs on Halloween or Christmas, including related beverages or exhibitions
2026:
2月/February：1. 邀请专家开展讲座/Invite experts to give lectures
3月/March：1. 安排医院志愿活动/Arrange volunteer activities at the hospital
2. 征集社员的罕见病科普文章并发表于社交平台/ collect rare disease popular science articles from members and publish them on social media
4月/April：1. 创意实验/experiment

2025-2026学年社长副社长：何睿妍，张熙童，郑佳欣

2025-2026学年活动总结：